Challenging Myself, Supporting Others: Why I’m Taking On the SUP Bike Run for BANA

When I was first diagnosed with an acoustic neuroma in 2023, I told myself, “Well… at least it’s benign.” That word stuck with me. It sounded reassuring. Harmless. But as anyone with an acoustic neuroma will tell you, the reality is very different.

Since that diagnosis, my life has changed in ways that aren’t always visible. I’ve lost the hearing in one ear completely. I live with 24/7 tinnitus — a constant, high-pitched ringing that never switches off. And although I’m in the “watch and wait” stage, waiting doesn’t mean forgetting. It means regular scans and carrying the quiet awareness that there’s something growing inside your head that might one day need intervention.

Social situations can be overwhelming. Noisy rooms are tough to navigate. Conversations take more energy than they used to. But through all of it, I’ve tried to stay active, positive and connected — especially through fitness. Which brings me to what I’m doing next.

This year, I’ve signed up to take on the SUPBIKERUN Devon Road Edition, happening on Sunday 13th July 2025 at Roadford Lake. It’s an endurance event that combines paddleboarding, cycling and trail running, all set against the stunning Devon countryside.

Here’s the challenge I’ve committed to:

• A 6 kilometre paddle across the open waters of Roadford Lake

• A 42 kilometre road bike ride through rolling Devon lanes

• And a 10 kilometre trail run to bring it home on foot

It’s going to test every part of me — physically and mentally — but I wanted to do something that pushed me out of my comfort zone. Something that mirrored the journey I’ve been on since my diagnosis. And this felt like the perfect fit.

I’m doing this to raise money for BANA, the British Acoustic Neuroma Association. They’ve been there for me through this journey, offering advice, information, and most importantly, a sense of community. When I first started trying to make sense of what was happening to me, BANA was one of the first places that made me feel less alone.

Their support has been invaluable, and now I want to give something back.

Training has become part of my routine — a way to stay focused, clear my head, and prove to myself that this condition doesn’t get the final say. I’ve leaned heavily on my Peloton setup for that structure, whether I’m grinding through a power zone ride or squeezing in a strength class after work. That little Peloton logo on my shirt during the paddle might not mean much to anyone else, but to me, it represents the hours of effort behind the scenes.

This event in Devon won’t be the last. I’m hoping it’s the first of many fundraising efforts in support of BANA, and in support of everyone out there living with the often misunderstood reality of an acoustic neuroma.

If you can spare a few pounds to donate, I’d be incredibly grateful. And if not, just sharing this post could help more people understand the impact of this condition — and the amazing work BANA does to support those of us living with it.